Business. In addition, participation within this study is critical to improving the management of children with a rare primary immune deficiency, WHIM syndrome in Queensland.Flights, accomodation and expenses for the X4 Pharmaceuticals NA and EU Investigator Meeting.To be involved in this international trial, attendance at the investigators meeting in Lisbon, Portugal is necessary to ensure full understanding of the study protocol including recruitment, retention, methods, data collection and follow-up. Representation from Queensland was also important to ensure continued networking and to maintain the profile of Children’s Health Queensland across the country.Sponsorship including airfares and accommodation to attend Together in Spinal Muscular Atrophy (SMA) forum in Sydney.Infants and children with Spinal Muscular Atrophy (SMA) require significant input from physiotherapists due to neurological and respiratory complications. DMD is a progressive and life limiting condition causing significant disability and morbidity therefore access to novel drug treatments and inclusion in clinical trials is seen as a vital part of managing and treating this condition.The gift was a prize won by CHQ Finance team. the aim of lifting modal share targets for pedestrians and cyclists to a more Cycle Strategy.The endorsed targets are conservative when compared Attendance at the 29th Annual Congress of the Association of the Thoracic and Cardiovascular Surgeons of Asia (ATCSA) will also provide an opportunity to network and benchmark current practice with other world clinicians in Paediatric Cardiothoracic Surgery.Sponsorship of afternoon tea to the Medical Education unit.The afternoon tea was provided as the promotion of resources ( DynamedPlus) that is freely available through CKN. Knowledge gained will enhance the role of implementing research studies in preterm and term born babies at risk of developing cerebral palsy, and the translation of research tools into clinical practice for babies born in Queensland.Sponsorship including return flights, meals and accommodation to attend PTC124-GD-041-DMD investigator meeting.Kate has been invited to attend an investigator meeting for an ongoing clinical trial. This will also be a platform to meet the similar professional from hospitals across Australia.Invitation to attend Tomorrow AC-055-312 Investigator Meeting in Singapore (flight and accommodation included).Queensland Children’s Hospital Cardiology department was chosen as sole clinical trial participant within Australia. This directly benefited the Queensland paediatric health managed by these services.Sponsorship including travel and accommodation to attend the ASCEND 2019 in Adelaide.Professional development and networking with other specialty nurses from immunology, rheumatology and dermatology. These are rare metabolic disorders with complex Multisystem challenges. openly publicise the TBUG to new riders in the area.We will have to hold at His volunteer work with the not-for-profit organisation contributes to improving the standards of healthcare offered to children around the nation and keeps him up to date in his clinical practice caring for children in Queensland.Sponsorship including travel and accommodation to attend a professional development event in Sydney.Karen was invited to attend a meeting supporting professional development in new technology on insulin pump therapy for children with Type 1 diabetes. She was invited to attend the Australian Nurses and Dietitians PKU workshop & a PKU patient-centered Conference & BioMarin PKU Advisory Board meeting to gain skills, knowledge, and resources to implement the required changes in her patients treatment regimens, and establish research connections which will enable the group to report finding in peer-reviewed journals and scientific meetings. In addition, this exhibition also showcased the latest medication and equipment advances in cardiology and cardiovascular surgery within the recent years.Sponsorship including return flights to Melbourne to attend the annual Haemophilia Group (ANZPHG) meeting and one nights accommodation.Attending the meeting on 18 – 19 October 2018 will provide an opportunity to discuss national standards of care in Haemophilia including future research, current research and the streamlining of practises nationally. In addition, participation within this study is critical to improve the healthcare management of children with peanut and other food allergies in Queensland.Sponsorship including travel and accommodation to attend the 7th Congress of the European Academy of Paediatric Societies in Paris, France.Professor Schibler’s attendance at the meeting on 30 October – 2 November 2018 offers the opportunity for him to connect, network and build relationships with people at the forefront of emergency medicine research and practice, as well as seek opportunities to present Queensland Health research findings to a group of international leaders. His volunteer work with the not-for-profit organisation contributes to improving the standards of healthcare offered to children around the nation and keeps him up to date in his clinical practice caring for children in Queensland.Sponsorship including travel costs and accommodation to attend VPI Update Seminar VIII and IX in Sydney and Auckland.Helen has been invited to present on therapy approaches for children with cleft lip and palate.
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